Yesterday they took out my port. My port used to be over my heart. It was just under my skin. The doctors used it to get IVIG [intravenous immunoglobulin]. I'm glad to have it out.
[mom] Marian was a very sweet little patient, even though she had a bad trip (hallucinations :( ) with her premeds. The nurses let her choose one of the quilts a sweet group makes for children at the hospital. This is an exhausted Marian sleeping under it last night after we got back from Philadelphia. Besides removing her port-a-cath, she also got tubes in her ears and a full GI scope, combining as many procedures as we could under one anesthesia, as she is high risk because of her lung disease. Marian usually won't sleep with a blanket, so it was folded at the foot of her bed, but when I came upstairs to hook up her formula pump, she had tucked herself in. I have to share one more thing about Marian's surgery. She has been long anticipating the ear tubes, as the driving force for their placement was her developing deafness, rather than frequent ear infections. On the way home, I asked if she was hearing better, and this was her reply: "Yes. Usually when it's raining, it sounds like music, but now I hear the drops." She's such an artist at heart. We love our princess and are overwhelmed with gratitude that all went well yesterday. It's always so scary to turn your baby over...
Yesterday they took out my port. My port used to be over my heart. It was just under my skin. The doctors used it to get IVIG [intravenous immunoglobulin]. I'm glad to have it out.
[mom] Marian was a very sweet little patient, even though she had a bad trip (hallucinations :( ) with her premeds. The nurses let her choose one of the quilts a sweet group makes for children at the hospital. This is an exhausted Marian sleeping under it last night after we got back from Philadelphia. Besides removing her port-a-cath, she also got tubes in her ears and a full GI scope, combining as many procedures as we could under one anesthesia, as she is high risk because of her lung disease. Marian usually won't sleep with a blanket, so it was folded at the foot of her bed, but when I came upstairs to hook up her formula pump, she had tucked herself in. I have to share one more thing about Marian's surgery. She has been long anticipating the ear tubes, as the driving force for their placement was her developing deafness, rather than frequent ear infections. On the way home, I asked if she was hearing better, and this was her reply: "Yes. Usually when it's raining, it sounds like music, but now I hear the drops." She's such an artist at heart. We love our princess and are overwhelmed with gratitude that all went well yesterday. It's always so scary to turn your baby over...
2 comments:
Wow! Lots of procedures... I'm glad things seem to have gone well and you found an anesthesiologist that would help out. Too bad the trip wasn't good for you M. I normally like anesthetic...
Marian, you are so brave! I am glad things went well and that you have your port out and your ear tubes safely in.
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