Tuesday, April 29, 2008

Day 6

Yesterday found Marian vomiting and sleeping. I just watched her & changed her when necessary.

Finally the 3rd anti-nausea medicine worked, because the long sleep (4:30-9:30, with a couple of brief awakenings) wasn't interrupted with necessary bed cleanings. She lost nearly half a kilo yesterday, and is on more fluids today to try to catch up. We've switched to total parenteral feeding (IV) to give her torn up gut a rest. She's also getting a rest from one of her antibiotics and her cyclosporin because her kidney-related blood tests are rising. Still urinating, though, so that's good, and her hemoglobin levels have risen a bit, so no need for transfusions yet.

Today she was alert enough to open a whole stack of mail: 30 letters, 6 big envelopes, 2 boxes. THANK YOU! And people already come in and say "Wow, you have a lot of friends!" It will take me all day to get these taped up :). We love it.

Now, 5 pm, she's been sleeping for a little more than an hour and enjoyed school and art therapy and even a little computer play (by request) before she asked for nausea medicine and promptly fell asleep.

5 comments:

sallyavena said...

I hope we get to see some pictures of her "Wonderful World"! I'm sure it is impressive, because who can't help but love Marian and the Goates?

The Sick Chick said...

Hang in there, kiddo! If you keep getting that much mail they may have to give you your own zip code :)

Brie (Wibit) said...

Package on its way from Scotland!

nyjlm said...

It is hard to hear of Marian feeling so poorly, and I've never even met her, I can't imagine what it does to mom,family, and friends. I hope that the anti-nausea meds help keep her comfortable and that this hard stuff doesn't last too long.

Meg said...

We just wanted to let you know we are thinking of you often.

Love,
Meg and Family