Day 6

Yesterday found Marian vomiting and sleeping. I just watched her & changed her when necessary.

Finally the 3rd anti-nausea medicine worked, because the long sleep (4:30-9:30, with a couple of brief awakenings) wasn't interrupted with necessary bed cleanings. She lost nearly half a kilo yesterday, and is on more fluids today to try to catch up. We've switched to total parenteral feeding (IV) to give her torn up gut a rest. She's also getting a rest from one of her antibiotics and her cyclosporin because her kidney-related blood tests are rising. Still urinating, though, so that's good, and her hemoglobin levels have risen a bit, so no need for transfusions yet.

Today she was alert enough to open a whole stack of mail: 30 letters, 6 big envelopes, 2 boxes. THANK YOU! And people already come in and say "Wow, you have a lot of friends!" It will take me all day to get these taped up :). We love it.

Now, 5 pm, she's been sleeping for a little more than an hour and enjoyed school and art therapy and even a little computer play (by request) before she asked for nausea medicine and promptly fell asleep.